So far he has raised about $75,000 and run nine marathons.
Choroidermia is a genetic disease that is passed on to males in the family. Scott, 36, and his 26-year brother as well as his 4-year old nephew have been diagnosed with the disease.
"It means I will definitely go blind unless something is done about it. It means my brother will definitely go blind unless something is done about it," he said. "We don't have a lot of time. People are losing their sight."
Scott was first diagnosed in 2003 after his brother went in for a check-up. Since then he says he has about 10 percent of his sight, which he describes as "tunnel vision." He has stopped driving and now walks with a cane.
Sunday he will be wearing a blindfold to protect his eyes from the sunlight so he doesn't go blind faster. Two people will be running with him to help him navigate the course.
He says he will miss not seeing Chicago's scenic course but says the money he will raise is well worth it.
"Choroidermia and blindness gets so little attention that its hard to raise it," he said. "We're not as close as I'd like us to be."
You can donate at ejscott.com.
-- Naomi Nix
Weather, traffic notes for 2012 marathon
About 45,000 participants from all 50 states and runners from more than 100 countries are expected to take part today in the 35th annual Bank of America Chicago Marathon.
Weather conditions are expected to be brisk, with temperatures in the low 40s at the start of the race along with chilly winds out of the northwest. Temperatures will slowly rise through the morning heading toward a high in the low 50s -- though you won't see that temperature until most of the runners have finished.
Watch for signs marking street closures and parking restrictions throughout the race route, which begins in Grant Park and extends north to Addison Street, west to Damen Avenue and south to 35th Street. No-parking restrictions along the route start at 1 a.m. Sunday.
Among the streets closed by the race are Columbus Drive, Grand Avenue, State Street, Sheridan Road, Clark Street, Ogden Avenue, Ashland Avenue, Halsted Street, Cermak Road, Michigan Avenue and Roosevelt Road and many more that aren't on the actual route will be affected. All of the closures will start about 7 a.m. today (though some roads in the Grant Park area are already closed) and the roads are expected to re-open gradually as the runners pass. Here's a detailed map of road closures.
"Extensive planning and the collaboration is part of hosting any large-scale Chicago event and public safety is of paramount importance," said Gary W. Schenkel, executive director of the Office of Emergency Management and Communications. "We encourage all participants and spectators to be alert, pay attention to any announcements by officials on race day and be prepared for any change in weather conditions that can impact their health or safety."
The marathon starts in two waves, one at 7:30 a.m. and the other at 8 a.m. Some street closures already are in effect around Grant Park. Route closures begin about 7 a.m. All city streets are anticipated to be reopened by 4:30 p.m. or when it is deemed safe to do so, OEMC said.
Residents are encouraged to read signage before parking in the area and to call 311 to locate a towed vehicle.
As always, public transportation is encouraged for these events. The CTA will run extra trains and buses for the marathon, and start service earlier Sunday.
For more route and marathon information, see www.chicagomarathon.com.
On Monday, downtown traffic will be affected by the annual Columbus Day parade, which steps off at noon on Columbus Drive and runs from Balbo to Monroe.
-- Heywood Hoffman